Sunday, September 19, 2010

Autism’s First Child - Magazine - The Atlantic

As new cases of autism have exploded in recent years—some form of the condition affects about one in 110 children today—efforts have multiplied to understand and accommodate the condition in childhood. But children with autism will become adults with autism, some 500,000 of them in this decade alone. What then? Meet Donald Gray Triplett, 77, of Forest, Mississippi. He was the first person ever diagnosed with autism. And his long, happy, surprising life may hold some answers.
"How we respond to those needs will be shaped in great measure by how we choose to view adults with autism. We can dissociate from them, regarding them as tragically broken persons, and hope we are humane enough to shoulder the burden of meeting their basic needs. This is the view that sees the disabled in general as wards of the community, morally and perhaps legally, and that, in the relatively recent past, often “solved” the “problem” of these disabled adults by warehousing them for life—literally in wards.
Alternatively, we can dispense with the layers of sorrow, and interpret autism as but one more wrinkle in the fabric of humanity. Practically speaking, this does not mean pretending that adults with autism do not need help. But it does mean replacing pity toward them with ambition for them. The key to this view is a recognition that “they” are part of “us,” so that those who don’t have autism are actively rooting for those who do."

Read more at

Autism’s First Child - Magazine - The Atlantic

Monday, September 13, 2010

Management Development Program in NGO Sector

Recently I attended the Management Training Workshop for NGO’s and it was difficult to open my eyes as early as 6am, actually torture…..Must they have sessions as early as 8:30 am and make me set my alarm so early in the morning? Me, who is a late riser? Sigh!

Reached the venue at S.P.Jain Institute of Management and Research, Andheri on the dot of 8:30 and after quick registration and a cup of coffee I was ushered into the auditorium for the first session in the morning. There were about one hundred attendees from different parts of India all with the common goal of getting a better insight on management skills in the NGO sector.


After the inauguration lighting of the lamp, Prof. Rukaiya Joshi spoke about how we can work more professionally as an NGO and how to implement what we learn into our daily day to day work activities. That no sector can work in isolation and learning from each other becomes the important factor for progress.

Dr Sesha Iyer spoke about the value based growth of an organization. There should be proper attitude for serving and one must believe in a notion to be able to send in their idea across to other people that they should be able to take a proper decision and that influence plays an important role. While there is need on one side to do the social work there are people willing to help from the other end, all we need to manage is the networking and communication.

During the morning session Prof. Rukaiya discussed the topic on ‘Accelerating socio-economic rural development’.

There are three factors that characterize the Indian Rural development scene:
  • Firstly, we need to recognize and address the vast diversity that exists in India due to socio-cultural and religious forces.
  • Secondly, the relationship between manager and the beneficiary is both rich and complex and this can be done best on friendly terms.
  • Third, there are four diverse types of organizations who are involved in rural development efforts in this country, such as voluntary agencies, co-operatives, corporate sectors and the government and each of these have their own strengths and weaknesses. 
In accelerating the rate of development we have to understand as to how we can contribute more than what we are already doing. During the research it has been observed that 60% of them have grown and 10% have become mega projects while some of them have ceased to exist.

Rural development is a process of facilitating empowerment of the people, leading them to self reliant and self sustaining activities, which is initiated through the interventions of external agencies.

Mainly there are four categories of action plans.
  • 1. Networking among agencies: It is important to have partnership with other agencies of similar goals to accelerate the growth. Make a list of other NGO’s in your area and network with them, know their struggles and challenges so that you don’t waste time by trial and error method, when you can easily learn from each other and facilitate growth. Appoint the person who excels in that field to take up that particular task.
  • 2. Using administrative tools: It is important to make reports of the project undertaken to know your strength and shortcomings which can help in future projects. It is important to find time to make proper formats and the reports so that task can be made more meaningful. The untapped sources of specialist and committed people are able to contribute to the rural development more effectively
  • 3. Energizing the agencies: Motivation is required to create conducive atmosphere for development, five ‘M’ of management add to the organization value, (Machine, men, money, market and material). If the funds are managed well then 20% of the useless expenses can be eliminated. Translating good intentions and high investment into rapid rural progress requires concern at the highest levels with outputs, and also with managerial intervention necessary to achieve them. Effective implementation is important for success. Just making a formula is not enough, implementation is also important. There should be margin for change. Thinking in same way hampers the creativity, sometimes it is necessary to adopt completely different situation, change the system and implement it.
  • 4. Involving the Beneficiaries: Efficiency (doing the right things), effectiveness (doing the right way) and accountability) taking the responsibility) is the root core of management. Social development is linked to economic development. If there is no growth that means something is wrong. If it does not work then you should know when to exit and that can happen only when you empower the beneficiaries. If the beneficiaries are always protected then they will never grow. Collective thinking has to happen. As long as you are clear in your ideas, you should be ready to take the blame. There should be no excuses for failure.

Wednesday, July 14, 2010

An Inspirational story of Hydrocephalic Survivor

"I changed from a guy who hoped he was dead one day to a guy who wanted to live every moment of his life as if he had never lived before. By the time I left college, I had a set of friends who were as close to me as family and I was a person, who completely believed in himself. One thing I learnt from all this, it was never the way others looked at me that changed, it was the way I looked at the world that made all the difference"
Says Tavish Chadha. He suffered from Hydrocephalic problem at the age of two months and has been operated seven times for his hydrocephalic problem, But that is all past, now he leads a very normal life in the corporate world and is a active blogger too.

He is happy to share his success story with the parents who have children suffering from the same disease.

1985 to 1989 – Early childhood

3rd July 1985, a new member was added into the Chadha family. We were a joint family back then. I wasn’t the first grandson born in the family, but as far I know, I was the most pampered. 2 months into this world and I developed a problem called Hydrocephalous. As soon as it was confirmed that something was wrong, we quickly drove down from Chandigarh to Delhi. Delhi at that time was simmering thanks to the anti-Sikh riots. Dad tells me that he stood at the gates of AIIMS holding me in his arms and the guard wouldn’t allow him inside accusing him of being a terrorist. After he pleaded and begged him, we were allowed in, but only till the kitchen and that’s where my check up was done. Anyways, the problem was soon diagnosed and I was rushed to the operation theatre. After the operation, the doctor came and told my dad that there are high chances that I may be a mentally retard and the best he could hope for is that I have an IQ of 80. After this dad went and visited ever single gurudwara in Punjab and asked god for just one thing, “Just make sure my son gets to study.” Contrary to all expectations, I turned out to be quite a bright little kid. At the age of three, I could actually talk to people about every tennis player of those times. At an age when kids couldn’t pronounce Czechoslovakia, I could tell people what the capital of that country was. My dad tells me this story every time I curse life or god. He just says, “If it wasn’t for that god, you wouldn’t have been what you are today. Out of all the people on this planet, you can’t afford be a non-believer. ” If it wasn’t for this incident, I would have never believed in the concept of god at all. I still don’t believe in the concept of multiple religions, but I do believe that there is a divine power up there who is running the whole show on this planet. Anyways, I had a couple of surgeries in Delhi in the next couple of years and then five more in Hyderabad, where we shifted after dad got a job in Asian Paints.

1989 to 1996 – growing up years phase 1

We moved to Hyderabad in early 1989. After staying in a rented house for two months, we moved into a flat given to us by the company. The society in which we moved into, had people from all over the country. I was a very touchy kid who was always over protected by my parents. To top it all, I was a complete tube light (although, some would say I still am). This proved to be a very dangerous combination. This made me very vulnerable and the other kids would find it very easy to manipulate me. I always found it difficult to learn when others taught me something, but would end up learning that very same thing all by myself in no time. My dad toiled unsuccessfully for over a month to teach me how to ride a bicycle and how to skate, but finally lost all hope one day. From the middle of nowhere, I started riding the bicycle and started skating all by myself. The problem wasn’t that I had a problem with his teaching; it was just that I couldn’t follow a standard step by step procedure of learning something. Even today, I find it difficult to follow a standard procedure in doing something. If I find a better way of doing something, I’ll go for it regardless of what people have to say. I am not sure if that’s a good thing or not, but it’s just the way I am.

1996-2003 – growing up years phase 2

I shifted from an all boys school to a co-education school. I had hardly any interaction with girls before this, except for my childhood friend, who I always treated like another guy. Now, here I was, all of a sudden found myself surrounded by aliens. My sister had a heart problem and my parents had to start concentrating on her and with the result I had to take complete control of my life. This proved a little too much for me and everything started falling apart. I soon started to lag behind in my academics, fellow students and teachers started to look down on me and as a result I had no friends. Things went from bad to worse over the next two years. My teachers used to humiliate me and beat me up every single day. I soon went into a state of depression and developed an inferiority complex. I lost all the confidence that I had and began to hope everyday that, that day was my last. Then one day, somewhere in the year 2000, when things had become way too much for me to handle, I went back home and burst out crying in front of my mother and I told her everything that was actually going on with me. Since then mom and dad helped me get out of my mess slowly and steadily. By the time I had passed my 10 th grade, the kid who had stopped seeing more than 50% on his mark-sheet, passed out in first division and by the time I passed out of my twelfth I could actually boast of a percentage in the eighties. It took a few more years to come out of my inferiority complex and depression. Those years weren’t easy, but today, as I look back, those days are an asset. Whenever am low or the chips are down, I just close my eyes for a few minutes and recollect those memories and say to myself, “if I could get through those days, I can get through anything.” People who have known about this feel sorry for me, but I kind of feel proud that all that happened. You may find it strange, but I kind of feel gifted.

2004-2007 – College life

My dad always wanted me to be an engineer but left the decision on me. However, one of my dad’s friends advised him not to make me take up engineering because he felt I wouldn’t be able to cope with it. Instead, he felt I should be doing a course like arts. My dad just replied saying “it’s completely up to him. I am not going to force him into anything.” But that very day I sub-consciously decided that I am going to be an engineer and show this guy that I CAN. So here I was, in March 2004, admitted into one of the best Engineering Collge in Hyderabad. My inferiority complex hadn’t completely gone away from me. The next three years passed by pretty fine. Not too many friends but I was leading a decent life. The turning point for me came in my final year, when I got through Accenture. It was no great interview that required me to know rocket science, but, it was the first time I had achieved something all by myself. Things changed all of a sudden, I was full of confidence and could now start looking at people eye to eye. Even my class mates were shocked on seeing the new me. I was a changed person. I changed from a guy who couldn’t speak to anybody to a guy who proposed a girl in front of a hundred people knowing she wouldn’t accept it because she like someone else. I changed from a guy who hoped he was dead one day to a guy who wanted to live every moment of his life as if he had never lived before. By the time I left college, I had a set of friends who were as close to me as family and I was a person, who completely believed in himself. One thing I learnt from all this, it was never the way others looked at me that changed, it was the way I looked at the world that made all the difference.

2007 to present – Life in the corporate world.

Although I had done my electrical engineering, I was always fond of software. I could sit for hours and code something. Joining Accenture was a dream come true. I entered this organization with a picture in my head, where all I would be doing is coding software, something I loved doing. However, I soon realized corporate world had many more dynamics attached to it. The past three years have gone from excitement of finally getting to earn your own money to frustration on seeing no future in what I was doing to realization that however pathetic things are, in the end of the day you have to face them. The question I had to ask myself again was, “are things that bad or is it the way I am looking at them?” The answer didn’t really surprise me. The minute I changed my perception about things, things at work changed automatically.

So that’s how my life has been for the past twenty five years. I won’t say it’s been a great life, neither will I say it’s been a bad life. It’s just been a journey of crests and troughs and with each crest and each trough, I have grown as a person.

Wednesday, April 28, 2010

Special Education Careers

Opportunities are growing in the field of special education
By Jerry Webster

The career field of Special Education is made up of more than teachers, though they make up the largest group of professionals. Special Education professionals provide a whole range of services and support to children with disabilities, from mobility, feeding and hand over hand support to physical therapy. Preparation for these jobs can be on the job training for high school graduates to specific certification programs that require Master's or Doctoral degrees.

Job opportunities in special education:

Therapeutic Support Staff: Not all people who work directly with special education need to have a degree or certification in the field. Support staff, who work as "wrap arounds" or classroom aides, work directly with children but are not required to have college degrees or certification in special education. Some college can be helpful, and because support staff do not "take their work home"--ie. plan or write reports, it is often rewarding work with little stress. Some training may be required, but the district, school or agency who employs you will provide it.

The responsibilities of the classroom aides revolve around that single student. That child may have been identified as needing "wrap around" support because of emotional, behavioral or physical needs that require individual attention. They will see that the student stays on task, and that besides supporting the student in participating appropriately in class, they also sees that the student does not disrupt the educational progress of other students. They are often provided in order to help a student stay in their neighborhood school in a general education classroom.

Classroom Aides:
Most school districts provide "para-professionals" who assist special education teachers by providing instructional support to individuals or small groups of students. Hired by school districts, they may require some college education. School district will hire classroom aides to assist special education teachers, occupation therapists or in full inclusion classrooms to provide support to students with disabilities. Classroom aides may be expected to provide toileting, hygiene or hand over hand support to children with more severe disabilities. Learning support children need less direct support: they need help completing assignments, checking homework, playing drill games, or working on spelling assignments.

Special Education Teachers: Teachers are required to have at least a special education degree from a college or university. Some states provide alternate routes to certification through post baccalaureate Masters Degree programs. Some states require Masters degrees. Another requirement since passage of the latest reauthorization of the Individuals with Disabilities Education Act is that teachers are "Highly Qualified" which requires certification in another curricular field
Occupational Therapists provide services to children and adults with disabilities, or who have suffered from brain injury, stroke, severe injury or any other injury or life event that takes away a person's ability to perform everyday tasks. They help disabled individuals acquire skills they need to cope with everyday life or find employment. They teach dressing, feeding, shoe tying and help build fine motor skills needed for handwriting, typing and other tasks needed for school. In educational settings they also help with the sensory needs of children with autistic spectrum disorders.

Occupational therapists also support students and teachers with adaptive technologies, such as adapted spoons, weighted vests (for sensory integration.) adapted pencils, computer keyboards, and on and on.


Speech Pathologists/Therapists: Speech-language pathologists or speech therapists work with special education students to assess, diagnose and treat disorders related to speech, language, cognitive communication and fluency. Many years ago, speech therapists focused on speech articulation problems such as lisps, stuttering and difficulty with r's and t's. Speech-language pathologists now focus on language disorders that effect a child's academic and life-skill functioning. They focus on pragmatics (understanding language as communication,) receptive language, augmented communication, fluency and language production. As well as working specifically with children with language difficulties, they also work with children with developmental delays and other cognitive disabilities who have difficulty producing language, understanding language or communicating.

Physical Therapists: Physical therapists (PTs) help patients, including accident victims and individuals with disabling conditions such as low-back pain, arthritis, heart disease, fractures, head injuries, and cerebral palsy, by providing services that restore function, improve mobility, relieve pain, and prevent or limit permanent physical disabilities. They restore, maintain, and promote overall fitness and health. PT's also provide support for children with physical disabilities to help them with ambulation (walking or getting around in a wheel chair) and the other physical requirements of daily living.

Source :http://specialed.about.com/od/specialedcareers/a/careerspreparation.htm

Tuesday, March 9, 2010

A reliable 'Downs Syndrome' worker

This is the true story of a mongol sent to me and it touched my heart: .....

I try not to be biased, but I had my doubts about hiring Stevie. His placement counselor assured me that he would be a good, reliable busboy.

But I had never had a mentally handicapped employee and wasn't sure I wanted one. I wasn't sure how my customers would react to Stevie.

He was short, a little dumpy with the smooth facial features and thick-tongued speech of Downs Syndrome. I wasn't worried about most of my trucker customers because truckers don't generally care who buses tables as long as the meatloaf platter is good and the pies are homemade.

The four-wheeler drivers were the ones who concerned me; the mouthy college kids traveling to school; the yuppie snobs who secretly polish their silverware with their napkins for fear of catching some dreaded 'truck stop germ' the pairs of white-shirted business men on expense accounts who think
every truck stop waitress wants to be flirted with. I knew those people would be uncomfortable around Stevie so I closely watched him for the first few weeks.

I shouldn't have worried. After the first week, Stevie had my staff wrapped around his stubby little finger, and within a month my truck regulars had adopted him as their official truck stop mascot.

After that, I really didn't care what the rest of the customers thought of him. He was like a 21-year-old kid in blue jeans and Nikes, eager to laugh and eager to please, but fierce in his attention to his duties. Every salt and pepper shaker was exactly in its place, not a bread crumb or coffee spill was visible when Stevie got done with the table. Our only problem was persuading him to wait to clean a table until after the customers were finished. He would hover in the background, shifting his weight from one foot to the other, scanning the dining room until a table was empty. Then he would scurry to the empty table and carefully bus dishes and glasses onto his cart and meticulously wipe the table up with a practiced flourish of his rag. If he thought a customer was watching, his brow would pucker with added concentration. He took pride in doing his job exactly right, and you had to love how hard he tried to please each and every person he met.

Over time, we learned that he lived with his mother, a widow who was disabled after repeated surgeries for cancer. They lived on their Social Security benefits in public housing two miles from the truck stop. Their social worker, who stopped to check on him every so often, admitted they had fallen between the cracks. Money was tight, and what I paid him was probably the difference between them being able to live together and Stevie being sent to a group home. That's why the restaurant was a gloomy place that morning last August, the first morning in three years that Stevie missed
work.

He was at the Mayo Clinic in Rochester getting a new valve or something put in his heart. His social worker said that people with Downs Syndrome often have heart problems at an early age so this wasn't unexpected, and there was a good chance he would come through the surgery in good shape and be back at work in a few months.

A ripple of excitement ran through the staff later that morning when word came that he was out of surgery, in recovery, and doing fine.

Frannie, the head waitress, let out a war hoop and did a little dance in the aisle when she heard the good news.

Marvin Ringers, one of our regular trucker customers, stared at the sight of this 50-year-old grandmother of four doing a victory shimmy beside his table

Frannie blushed, smoothed her apron and shot Marvin a withering look.

He grinned. 'OK, Frannie, what was that all about?' he asked.

'We just got word that Stevie is out of surgery and going to be okay.'

'I was wondering where he was. I had a new joke to tell him. What was the surgery about?'

Frannie quickly told Marvin and the other two drivers sitting at his booth about Stevie's surgery, then sighed: ' Yeah, I'm glad he is going to be OK,'she said. 'But I don't know how he and his Mom are going to handle all the bills. From what I hear, they're barely getting by as it is.'Marvin nodded thoughtfully, and Frannie hurried off to wait on the rest of her tables. Since I hadn't had time to round up a busboy to replace Stevie and really didn't want to replace him, the girls were busing their own tables that day until we decided what to do.

After the morning rush, Frannie walked into my office. She had a couple of paper napkins in her hand and a funny look on her face.

'What's up?' I asked.

'I didn't get that table where Marvin and his friends were sitting cleared off after they left, and Pete and Tony were sitting there when I got back to clean it off,' she said. 'This was folded and tucked under a coffee cup'

She handed the napkin to me, and three $20 bills fell onto my desk when I opened it. On the outside, in big, bold letters, was printed 'Something For Stevie.'

'Pete asked me what that was all about,' she said, 'so I told him about Stevie and his Mom and everything , and Pete looked at Tony and Tony looked at Pete, and they ended up giving me this.' She handed me another paper napkin that had 'Something For Stevie' scrawled on its outside. Two $50
bills were tucked within its folds. Frannie looked at me with wet, shiny eyes, shook her head and said simply: 'truckers.'

That was three months ago. Today is Thanksgiving, the first day Stevie is supposed to be back to work.

His placement worker said he's been counting the days until the doctor said he could work, and it didn't matter at all that it was a holiday. He called 10 times in the past week, making sure we knew he was coming, fearful that we had forgotten him or that his job was in jeopardy. I arranged to have his mother bring him to work. I then met them in the parking lot and invited them both to celebrate his day back.

Stevie was thinner and paler, but couldn't stop grinning as he pushed through the doors and headed for the back room where his apron and busing cart were waiting.

'Hold up there, Stevie, not so fast,' I said. I took him and his mother by their arms. 'Work can wait for a minute. To celebrate your coming back, breakfast for you and your mother is on me!' I led them toward a large corner booth at the rear of the room.

I could feel and hear the rest of the staff following behind as we marched through the dining room. Glancing over my shoulder, I saw booth after booth of grinning truckers empty and join the procession. We stopped in front of the big table. Its surface was covered with coffee cups, saucers and dinner plates, all sitting slightly crooked on dozens of folded paper n napkins. 'First thing you have to do, Stevie, is clean up this mess,' I said. I tried to sound stern.

Stevie looked at me, and then at his mother, then pulled out one of the napkins. It had 'Something for Stevie' printed on the outside. As he picked it up, two $10 bills fell onto the table.

Stevie stared at the money, then at all the napkins peeking from beneath the tableware, each with his name printed or scrawled on it. I turned to his mother. 'There's more than $10,000 in cash and checks on that table, all from truckers and trucking companies that heard about your problems. 'Happy
Thanksgiving. '

Well, it got real noisy about that time, with everybody hollering and shouting, and there were a few tears, as well.

But you know what's funny? While everybody else was busy shaking hands and hugging each other, Stevie, with a big smile on his face, was busy clearing all the cups and dishes from the table.

Best worker I ever hired.

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